{"id":150610,"url":"https://ivod.ly.gov.tw/Play/Clip/1M/150610","video_url":"https://ivod-lyvod.cdn.hinet.net/vod_1/_definst_/mp4:1MClips/8fc09d97f3151fdfbb32c90daea10a56b83f090e56da198af8ba9b0039caa7a6903534be09e65b475ea18f28b6918d91.mp4/playlist.m3u8","委員名稱":"王正旭","委員發言時間":"11:16:15 - 11:26:44","影片長度":"00:10:29","會議時間":"2024-03-28T09:00:00+08:00","會議名稱":"立法院第11屆第1會期社會福利及衛生環境委員會第9次全體委員會議（事由：一、邀請衛生福利部部長就「社會安全網缺失檢討及具體改進作法」進行專題報告，並備質詢。\n二、邀請衛生福利部部長、教育部次長就「出養童遭虐致死事件檢討會議要求新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告」進行專題報告，並備質詢。\n三、處理中華民國113年度中央政府總預算決議有關衛生福利部主管預算凍結案18案（報告事項）。【第18案，如經復議則不予處理】\n【專題報告綜合詢答】\n【3月27日及28日二天一次會】）","meet":{"tmpMeeting":null,"title":"第11屆第1會期社會福利及衛生環境委員會第9次全體委員會議","term":11,"type":"委員會","sessionPeriod":1,"sessionTimes":9,"committees":[26],"id":"委員會-11-1-26-9"},"date":"2024-03-28","duration":629,"end_time":"2024-03-28T11:26:44+08:00","start_time":"2024-03-28T11:16:15+08:00","features":["ai-transcript","gazette"],"type":"Clip","gazette":{"lineno":1396,"blocks":[["王委員正旭：（11時16分）謝謝主席，麻煩薛部長。"],["主席：請薛部長。"],["薛部長瑞元：委員好。"],["王委員正旭：部長好，今天就兩個部分來跟部長討論一下。第一部分是如何落實兒童的友善醫療，第二部分是針對癌症這個重大議題，如何能夠強化我們的癌症篩檢，來提升整個癌症的存活率。有關兒童友善醫療的部分，應該是多面向的，因為我們臺灣少子化，每一個孩子都是寶，我們應該在健康的時候給他很完整的照護，當他有疾病的時候，如何能夠讓他接受整體的醫療，而且能夠讓他順利地康復，所以在這部分，我們也知道明年度開始，就會進行優化兒童醫療照護計畫的第二期，在這一部分期待能夠確保提供所有兒童必要的醫療，讓他們都能夠得到好的協助。本席上次也有請教過部長，有關在優化兒童照護醫療的過程當中，兒童醫療輔導師在臺灣是一個已經在執行中的工作，可是還沒有辦法得到很多的重視，因為我們知道，很多的兒癌病人在整個診療過程裡面真的很需要、很需要更多的陪伴，或者是有更多的照護，醫療同仁包括醫師、心理師、護理師，其實也都可以擔負很好的工作，可是如果有兒童醫療輔導師加入的話，相對來講，就能夠讓他們整個照護的過程可以更完整，部長，這一部分不知道目前的狀況如何？"],["薛部長瑞元：兒童醫療輔導師這樣子的一個概念，我想是來自美國、加拿大那邊的，我們國內也有一些人去那邊受訓，回來也在做這個工作，但是如果要它變成一個專業的職類，就變成在國內必須要教、考、訓、用都有，所以兒童醫療輔導師的部分，離這個還很遠，但是我們是可以用一個計畫型、試辦計畫型的方式，也許可以來試試看，也就是說這些人要受到一定的訓練，但是他可能也要有一些專業的背景，這樣子會比較容易來做處理。"],["王委員正旭：好，我們很期待，如果能夠有一個試辦計畫，或者是一個專案型的計畫的話，希望能夠把這樣的需求也納入到兒童醫療照護的一部分，謝謝部長。關於兒癌，其實2022年一共有436位的兒癌患者被診斷，等於每一天至少會有一位兒癌患者被確診，其中有146位是屬於血癌，另外將近300位是屬於固態癌症，固態癌症包括血癌的病人，其實化療、放射治療效果都非常好，目前5年的存活率是80%以上，意思就是說，如果我們好好把這一群兒癌的病人照顧好，他的存活率是非常高的，當然我們也很希望經過治療以後，他長期的副作用可以減少，很多兒癌尤其是腦神經部分的腫瘤，對於放射治療的敏感度很高，可是我們也很擔心現在一般的放射治療，其實對於正常組織的傷害相對是比較高的。透過先進的醫學，包括質子治療，是一個對減低副作用比較適當的治療選項，這一部分不知道部裡面有沒有針對如何能夠有機會納入健保給付進行討論？因為去年的資料，石署長是說還沒有收到相關的申請，不知道目前的狀況如何？"],["薛部長瑞元：這個目前應該有一個放射學會提出來申請，現在是進入到HTA，也就是Health Technology Assessment的階段，現在是在CDE那邊做評估，對於它的財務，或者是它的效果的一個評估。"],["王委員正旭：好，質子治療費用真的是不低，一個完整的療程可能要將近百萬，對於很多兒癌的家庭是一個負擔，如果能夠有更好的方式來協助，尤其整個療程也都那麼辛苦，如果能夠透過國家的力量來照顧兒童在成長過程中因為疾病產生的需要，而得到更好的結果，我們真的很期待，也謝謝部長剛剛告訴我們，如果它已經進入到HTA評估的話，希望能夠很快有好的結果出來。","再過來，要跟你確認一下，剛剛菁徽委員也有提到的癌症新藥基金的部分，我們希望能夠儘速地去使用到這個新藥的基金，很快去銜接國人在這部分的醫療需要，大家都殷殷期盼，所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題。部長這邊還有沒有補充？"],["薛部長瑞元：關於這個部分的話，當初是有兩個意見，一個是去修癌症防治法，成立一個特別的基金，這個部分的話會有一些比較麻煩的問題，也就是說，未來這一個，假設叫做基金，這個基金可能不是只有癌症，可能罕病也必須加進來，這樣子的話，又要修一個罕病的防治條例，所以第一個，在法規上面的話，會變成讓這個新藥的範圍受到限縮，這是第一個。","第二個，依現在的財政紀律法，如果政府要去設這個基金，就必須要有什麼財源等等這些規畫才可以，主計總處對這個是持比較保留的態度，所以我們現在的作法是先把這個機制……因為這個需要公務預算，公務預算就先挹注到健保基金裡面來，但是因為它是特別指定用途的，所以我們就要去修全民健康保險基金收支保管及運用辦法，讓這些公務預算補貼進來的基金，可以做指定用途的使用，不會說一定統統都入到總額裡面，或者變成是……"],["王委員正旭：好，至少讓社會或者是醫界不要有疑慮，說又進入到健保總額，造成一些不當的影響。"],["薛部長瑞元：對。"],["王委員正旭：好，謝謝。再過來，我們也知道如果是女性癌友的話，對於他生育這個權益的保障，我們也希望能夠適度地提高，尤其是在少子化的這個過程當中，所以不知道部裡面有沒有開始在研議關於凍卵的補助？如果四十歲以前的女性因為癌症診療關係造成有這種需要的話，那麼我希望衛福部能就這方面有更積極的作為並給予協助。"],["薛部長瑞元：目前全世界對於所謂的社會性凍卵是沒有補助的，也就是為了自己的需要而凍卵，準備以後再取出來用，這部分沒有任何的政府補助。至於醫療性的，也就是剛剛委員所提到的，因為癌症可能要接受化療、接受放射療法，這可能會影響到生子組織，所以先取出來凍卵，以免以後沒有機會，這個有，我們現在往這方面去做研議。依全民健保法規定，人工生殖並不給付，所以必須用公務預算支應。這部分我已經請國民健康署做這一方面的研議。"],["王委員正旭：好，希望能讓我們的婦女們，尤其是因癌症診療處理造成的影響者，也能夠讓他更願意把生育納為重要考量。最後，癌症早期發現真的能夠幫助癌友得到最好的治癒機會，所以我們很期待篩檢部分，能針對條件做適度放寬。因為時間關係，希望把這些資訊提供給部裡做參考。"],["薛部長瑞元：這個我們會研議。"],["王委員正旭：麻煩部長，謝謝。"],["主席：謝謝王正旭委員。接下來請盧縣一委員發言。"]],"agenda":{"page_end":526,"meet_id":"委員會-11-1-26-9","speakers":["黃秀芳","蘇清泉","林月琴","陳昭姿","林淑芬","陳菁徽","王育敏","廖偉翔","涂權吉","王正旭","盧縣一","郭昱晴","鄭天財Sra 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\"start\": 621.601, \"end\": 621.621, \"score\": 0.133}], \"language\": \"zh\"}","srt":"1\n00:00:10,156 --> 00:00:12,203\n謝謝主席麻煩薛部長請薛部長\n\n2\n00:00:21,853 --> 00:00:42,170\n今天就兩個部分來跟部長討論一下第一部分就是如何落實兒童的友善醫療第二部分就是針對於癌症還是一個重大議題如何能夠強化我們的癌症篩檢來提升整個癌症的存活率\n\n3\n00:00:43,451 --> 00:01:04,665\n有關於兒童友善醫療的部分應該是多面向的因為我們台灣真的少子化那也期待每一個孩子都是保我們應該在健康的時候給他很完整的照護當他有疾病的時候如何能夠讓他接受整體的醫療而且能夠讓他順利的康復\n\n4\n00:01:05,737 --> 00:01:21,587\n所以在這部分我們也知道明年度開始就會進行優化兒童醫療照護計畫的第二期那在這部分期待能夠確保提供所有的兒童必須的醫療都能夠得到好的協助\n\n5\n00:01:22,808 --> 00:01:40,928\n本席上次也有請教過部長有關於這個在優化兒童照護醫療過程當中兒童醫療輔導師他在臺灣是一個已經在執行中可是還沒有辦法能夠得到很多的重視因為我們知道\n\n6\n00:01:41,829 --> 00:01:42,350\n議員提供的內容\n\n7\n00:02:07,293 --> 00:02:14,600\n就能夠讓他們的整個照顧過程可以更完整那這部分不知道部長目前的狀況如何\n\n8\n00:02:15,792 --> 00:02:39,569\n兒童醫療輔導師這樣子一個概念我想是來自美國加拿大那邊我們國內也有一些人去那邊受到訓練回來也在做這個工作但是如果要他變成一個專業的職類就變成在國內必須要教考、訓用都有所以這個離兒童醫療輔導師的這一個部分的話離這個還很遠\n\n9\n00:02:44,292 --> 00:03:01,191\n但是我們是可以用一個計畫型的事辦計畫型的也許來可以試試看那也就是說這些人要受到一定的訓練但是他可能要有一些專業的背景那這樣子會比較容易來做處理\n\n10\n00:03:02,052 --> 00:03:17,118\n是,好,所以我們很期待如果能夠有一個示範計畫或者是一個專案型的計畫的話希望能夠把這樣的需求也能夠納入到兒童醫療照護的一部分謝謝部長\n\n11\n00:03:19,199 --> 00:03:45,971\n有關於兒癌其實去年2022年一共有436位的兒癌被診斷等於每一天至少會有一位兒癌被確診其中有146位是屬於血癌另外將近300位是屬於固態癌症固態癌症包括血癌的病人其實對化療對放射治療效果都非常好\n\n12\n00:03:46,511 --> 00:04:02,559\n目前5年的存活率以上意思就是說如果我們好好把這一群兒癌的病人照顧好他的存活率是非常高的當然我們很希望經過治療以後他比較長期的副作用可以減少\n\n13\n00:04:03,639 --> 00:04:26,946\n很多兒癌尤其是腦神經部分的腫瘤對於放射治療敏感度很高可是我們也很擔心現在一般的放射治療其實它對正常組織的傷害相對是比較高那透過先進的醫學包括直指治療是一個可以提供減低副作用相關的這個比較適當的一個治療選項\n\n14\n00:04:29,006 --> 00:04:48,365\n這一部分不知道部裡面有沒有針對於如何能夠有機會納入一個健保給付的狀況因為去年的資料司書長是說還沒有收到相關的申請那不知道目前的狀況如何在目前應該有這一個\n\n15\n00:04:51,988 --> 00:04:58,051\n新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告\n\n16\n00:05:19,801 --> 00:05:20,322\n委員會主席\n\n17\n00:05:38,444 --> 00:05:41,926\n二、邀請衛生福利部部長、教育部次長就«出養童遭虐致死事件檢討會議要求新北市政府及兒童福利聯盟所提供之檢討報告》\n\n18\n00:05:55,935 --> 00:06:16,985\n再過來就是要跟你確認一下剛剛菌輝委員也有提到的這個癌症新藥基金的部分我們知道其實如果希望能夠儘速的去使用到這個新藥的基金很快去銜接國人在這部分的醫療需要\n\n19\n00:06:18,246 --> 00:06:27,463\n大家都因應期盼所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題那部長這邊還有沒有補充?\n\n20\n00:06:31,148 --> 00:06:59,174\n有關於這個部分的話當初是有兩個意見一個就是說去修癌症防治法成立一個特別的基金那這個部分的話會有一些比較麻煩的問題也就是說未來這個假設說叫做基金這個基金的話可能不是只有癌症可能罕病的話也必須會是進來那這樣子又要修一個罕病的那個防治條例\n\n21\n00:07:00,274 --> 00:07:29,566\n所以這樣子第一個在法規上面的話那會變成讓這個新要的範圍受到限縮這是第一個第二個依現在的財政紀律法如果政府要去設這個基金的話那就必須要有什麼財源等等這些的規劃都可以所以主計總署對這個是持比較保留的態度所以我們現在的做法就是先把這個機制因為是需要公務基金\n\n22\n00:07:30,086 --> 00:07:55,082\n公務基金就先依註到健保的裡面來健保基金裡面來但是因為他是特別要做指定的用途的所以我們就要去修這個前面健康保險的這個基金收支管理局應用辦法讓這個這些公務預算的補貼進來的這一些基金可以做指定用途的使用\n\n23\n00:07:56,002 --> 00:08:24,675\n阿不會說一定通通都到這一個變成說是那個總額裡面的一部分或是說變成是至少讓社會或者是醫界不要疑慮說進入到健保總額造成一些不當的影響好謝謝那再過來就是我們也知道還有\n\n24\n00:08:25,835 --> 00:08:53,421\n他如果是女性癌友的話他對於生育的這個權益的保障我們也希望能夠適度的提高尤其是在少子化的這個過程當中所以不知道部裡面有沒有開始在研議有關動卵補助如果是40歲以前的女性因為癌症診療關係造成了這種需要的話那這方面希望能夠有更積極的作為來協助\n\n25\n00:08:55,670 --> 00:09:17,432\n目前全世界我們是對所謂的社會性凍卵這個是沒有也就是說你為了自己的需要然後去做凍卵那準備說以後再來取出來用這個是沒有說有任何的政府補助但是對醫療性的也就是說剛剛像委員提到的你這個因為癌症你可能要接受化療接受放射療法\n\n26\n00:09:18,012 --> 00:09:44,288\n那可能會影響到你的生子的組織所以這一類的動亂先取出來動亂以免說以後沒有機會這個是有那我們現在是往這方面去做研議那因為全民健保法裡面是規定是人工生子的話是不給付所以我們必須要用公務預算那這部分的話我已經在請國民健康署在做這一方面的研議\n\n27\n00:09:44,946 --> 00:09:58,113\n好希望讓我們的婦女們尤其是有因為癌症診療處理當中造成的影響也能夠讓她更願意把這個生育的部分納為她的重要考量那最後還是有關於\n\n28\n00:10:00,454 --> 00:10:21,621\n這個癌症的早期發現是真的是能夠能夠幫助整個癌友得到最好治癒率的機會所以我們很期待很期待在做篩檢的部分能夠針對於條件做適度的放寬那因為時間的關係我們希望把這些資訊也提供給部裡做參考\n\n","tsv":"start\tend\ttext\n10156\t12203\t謝謝主席麻煩薛部長請薛部長\n21853\t42170\t今天就兩個部分來跟部長討論一下第一部分就是如何落實兒童的友善醫療第二部分就是針對於癌症還是一個重大議題如何能夠強化我們的癌症篩檢來提升整個癌症的存活率\n43451\t64665\t有關於兒童友善醫療的部分應該是多面向的因為我們台灣真的少子化那也期待每一個孩子都是保我們應該在健康的時候給他很完整的照護當他有疾病的時候如何能夠讓他接受整體的醫療而且能夠讓他順利的康復\n65737\t81587\t所以在這部分我們也知道明年度開始就會進行優化兒童醫療照護計畫的第二期那在這部分期待能夠確保提供所有的兒童必須的醫療都能夠得到好的協助\n82808\t100928\t本席上次也有請教過部長有關於這個在優化兒童照護醫療過程當中兒童醫療輔導師他在臺灣是一個已經在執行中可是還沒有辦法能夠得到很多的重視因為我們知道\n101829\t102350\t議員提供的內容\n127293\t134600\t就能夠讓他們的整個照顧過程可以更完整那這部分不知道部長目前的狀況如何\n135792\t159569\t兒童醫療輔導師這樣子一個概念我想是來自美國加拿大那邊我們國內也有一些人去那邊受到訓練回來也在做這個工作但是如果要他變成一個專業的職類就變成在國內必須要教考、訓用都有所以這個離兒童醫療輔導師的這一個部分的話離這個還很遠\n164292\t181191\t但是我們是可以用一個計畫型的事辦計畫型的也許來可以試試看那也就是說這些人要受到一定的訓練但是他可能要有一些專業的背景那這樣子會比較容易來做處理\n182052\t197118\t是,好,所以我們很期待如果能夠有一個示範計畫或者是一個專案型的計畫的話希望能夠把這樣的需求也能夠納入到兒童醫療照護的一部分謝謝部長\n199199\t225971\t有關於兒癌其實去年2022年一共有436位的兒癌被診斷等於每一天至少會有一位兒癌被確診其中有146位是屬於血癌另外將近300位是屬於固態癌症固態癌症包括血癌的病人其實對化療對放射治療效果都非常好\n226511\t242559\t目前5年的存活率以上意思就是說如果我們好好把這一群兒癌的病人照顧好他的存活率是非常高的當然我們很希望經過治療以後他比較長期的副作用可以減少\n243639\t266946\t很多兒癌尤其是腦神經部分的腫瘤對於放射治療敏感度很高可是我們也很擔心現在一般的放射治療其實它對正常組織的傷害相對是比較高那透過先進的醫學包括直指治療是一個可以提供減低副作用相關的這個比較適當的一個治療選項\n269006\t288365\t這一部分不知道部裡面有沒有針對於如何能夠有機會納入一個健保給付的狀況因為去年的資料司書長是說還沒有收到相關的申請那不知道目前的狀況如何在目前應該有這一個\n291988\t298051\t新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告\n319801\t320322\t委員會主席\n338444\t341926\t二、邀請衛生福利部部長、教育部次長就 «出養童遭虐致死事件檢討會議要求新北市政府及兒童福利聯盟所提供之檢討報告》\n355935\t376985\t再過來就是要跟你確認一下剛剛菌輝委員也有提到的這個癌症新藥基金的部分我們知道其實如果希望能夠儘速的去使用到這個新藥的基金很快去銜接國人在這部分的醫療需要\n378246\t387463\t大家都因應期盼所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題那部長這邊還有沒有補充?\n391148\t419174\t有關於這個部分的話當初是有兩個意見一個就是說去修癌症防治法成立一個特別的基金那這個部分的話會有一些比較麻煩的問題也就是說未來這個假設說叫做基金這個基金的話可能不是只有癌症可能罕病的話也必須會是進來那這樣子又要修一個罕病的那個防治條例\n420274\t449566\t所以這樣子第一個在法規上面的話那會變成讓這個新要的範圍受到限縮這是第一個第二個依現在的財政紀律法如果政府要去設這個基金的話那就必須要有什麼財源等等這些的規劃都可以所以主計總署對這個是持比較保留的態度所以我們現在的做法就是先把這個機制因為是需要公務基金\n450086\t475082\t公務基金就先依註到健保的裡面來健保基金裡面來但是因為他是特別要做指定的用途的所以我們就要去修這個前面健康保險的這個基金收支管理局應用辦法讓這個這些公務預算的補貼進來的這一些基金可以做指定用途的使用\n476002\t504675\t阿不會說一定通通都到這一個變成說是那個總額裡面的一部分或是說變成是至少讓社會或者是醫界不要疑慮說進入到健保總額造成一些不當的影響好謝謝那再過來就是我們也知道還有\n505835\t533421\t他如果是女性癌友的話他對於生育的這個權益的保障我們也希望能夠適度的提高尤其是在少子化的這個過程當中所以不知道部裡面有沒有開始在研議有關動卵補助如果是40歲以前的女性因為癌症診療關係造成了這種需要的話那這方面希望能夠有更積極的作為來協助\n535670\t557432\t目前全世界我們是對所謂的社會性凍卵這個是沒有也就是說你為了自己的需要然後去做凍卵那準備說以後再來取出來用這個是沒有說有任何的政府補助但是對醫療性的也就是說剛剛像委員提到的你這個因為癌症你可能要接受化療接受放射療法\n558012\t584288\t那可能會影響到你的生子的組織所以這一類的動亂先取出來動亂以免說以後沒有機會這個是有那我們現在是往這方面去做研議那因為全民健保法裡面是規定是人工生子的話是不給付所以我們必須要用公務預算那這部分的話我已經在請國民健康署在做這一方面的研議\n584946\t598113\t好希望讓我們的婦女們尤其是有因為癌症診療處理當中造成的影響也能夠讓她更願意把這個生育的部分納為她的重要考量那最後還是有關於\n600454\t621621\t這個癌症的早期發現是真的是能夠能夠幫助整個癌友得到最好治癒率的機會所以我們很期待很期待在做篩檢的部分能夠針對於條件做適度的放寬那因為時間的關係我們希望把這些資訊也提供給部裡做參考\n","txt":"謝謝主席麻煩薛部長請薛部長\n今天就兩個部分來跟部長討論一下第一部分就是如何落實兒童的友善醫療第二部分就是針對於癌症還是一個重大議題如何能夠強化我們的癌症篩檢來提升整個癌症的存活率\n有關於兒童友善醫療的部分應該是多面向的因為我們台灣真的少子化那也期待每一個孩子都是保我們應該在健康的時候給他很完整的照護當他有疾病的時候如何能夠讓他接受整體的醫療而且能夠讓他順利的康復\n所以在這部分我們也知道明年度開始就會進行優化兒童醫療照護計畫的第二期那在這部分期待能夠確保提供所有的兒童必須的醫療都能夠得到好的協助\n本席上次也有請教過部長有關於這個在優化兒童照護醫療過程當中兒童醫療輔導師他在臺灣是一個已經在執行中可是還沒有辦法能夠得到很多的重視因為我們知道\n議員提供的內容\n就能夠讓他們的整個照顧過程可以更完整那這部分不知道部長目前的狀況如何\n兒童醫療輔導師這樣子一個概念我想是來自美國加拿大那邊我們國內也有一些人去那邊受到訓練回來也在做這個工作但是如果要他變成一個專業的職類就變成在國內必須要教考、訓用都有所以這個離兒童醫療輔導師的這一個部分的話離這個還很遠\n但是我們是可以用一個計畫型的事辦計畫型的也許來可以試試看那也就是說這些人要受到一定的訓練但是他可能要有一些專業的背景那這樣子會比較容易來做處理\n是,好,所以我們很期待如果能夠有一個示範計畫或者是一個專案型的計畫的話希望能夠把這樣的需求也能夠納入到兒童醫療照護的一部分謝謝部長\n有關於兒癌其實去年2022年一共有436位的兒癌被診斷等於每一天至少會有一位兒癌被確診其中有146位是屬於血癌另外將近300位是屬於固態癌症固態癌症包括血癌的病人其實對化療對放射治療效果都非常好\n目前5年的存活率以上意思就是說如果我們好好把這一群兒癌的病人照顧好他的存活率是非常高的當然我們很希望經過治療以後他比較長期的副作用可以減少\n很多兒癌尤其是腦神經部分的腫瘤對於放射治療敏感度很高可是我們也很擔心現在一般的放射治療其實它對正常組織的傷害相對是比較高那透過先進的醫學包括直指治療是一個可以提供減低副作用相關的這個比較適當的一個治療選項\n這一部分不知道部裡面有沒有針對於如何能夠有機會納入一個健保給付的狀況因為去年的資料司書長是說還沒有收到相關的申請那不知道目前的狀況如何在目前應該有這一個\n新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告\n委員會主席\n二、邀請衛生福利部部長、教育部次長就 «出養童遭虐致死事件檢討會議要求新北市政府及兒童福利聯盟所提供之檢討報告》\n再過來就是要跟你確認一下剛剛菌輝委員也有提到的這個癌症新藥基金的部分我們知道其實如果希望能夠儘速的去使用到這個新藥的基金很快去銜接國人在這部分的醫療需要\n大家都因應期盼所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題那部長這邊還有沒有補充?\n有關於這個部分的話當初是有兩個意見一個就是說去修癌症防治法成立一個特別的基金那這個部分的話會有一些比較麻煩的問題也就是說未來這個假設說叫做基金這個基金的話可能不是只有癌症可能罕病的話也必須會是進來那這樣子又要修一個罕病的那個防治條例\n所以這樣子第一個在法規上面的話那會變成讓這個新要的範圍受到限縮這是第一個第二個依現在的財政紀律法如果政府要去設這個基金的話那就必須要有什麼財源等等這些的規劃都可以所以主計總署對這個是持比較保留的態度所以我們現在的做法就是先把這個機制因為是需要公務基金\n公務基金就先依註到健保的裡面來健保基金裡面來但是因為他是特別要做指定的用途的所以我們就要去修這個前面健康保險的這個基金收支管理局應用辦法讓這個這些公務預算的補貼進來的這一些基金可以做指定用途的使用\n阿不會說一定通通都到這一個變成說是那個總額裡面的一部分或是說變成是至少讓社會或者是醫界不要疑慮說進入到健保總額造成一些不當的影響好謝謝那再過來就是我們也知道還有\n他如果是女性癌友的話他對於生育的這個權益的保障我們也希望能夠適度的提高尤其是在少子化的這個過程當中所以不知道部裡面有沒有開始在研議有關動卵補助如果是40歲以前的女性因為癌症診療關係造成了這種需要的話那這方面希望能夠有更積極的作為來協助\n目前全世界我們是對所謂的社會性凍卵這個是沒有也就是說你為了自己的需要然後去做凍卵那準備說以後再來取出來用這個是沒有說有任何的政府補助但是對醫療性的也就是說剛剛像委員提到的你這個因為癌症你可能要接受化療接受放射療法\n那可能會影響到你的生子的組織所以這一類的動亂先取出來動亂以免說以後沒有機會這個是有那我們現在是往這方面去做研議那因為全民健保法裡面是規定是人工生子的話是不給付所以我們必須要用公務預算那這部分的話我已經在請國民健康署在做這一方面的研議\n好希望讓我們的婦女們尤其是有因為癌症診療處理當中造成的影響也能夠讓她更願意把這個生育的部分納為她的重要考量那最後還是有關於\n這個癌症的早期發現是真的是能夠能夠幫助整個癌友得到最好治癒率的機會所以我們很期待很期待在做篩檢的部分能夠針對於條件做適度的放寬那因為時間的關係我們希望把這些資訊也提供給部裡做參考\n","vtt":"WEBVTT\n\n00:10.156 --> 00:12.203\n謝謝主席麻煩薛部長請薛部長\n\n00:21.853 --> 00:42.170\n今天就兩個部分來跟部長討論一下第一部分就是如何落實兒童的友善醫療第二部分就是針對於癌症還是一個重大議題如何能夠強化我們的癌症篩檢來提升整個癌症的存活率\n\n00:43.451 --> 01:04.665\n有關於兒童友善醫療的部分應該是多面向的因為我們台灣真的少子化那也期待每一個孩子都是保我們應該在健康的時候給他很完整的照護當他有疾病的時候如何能夠讓他接受整體的醫療而且能夠讓他順利的康復\n\n01:05.737 --> 01:21.587\n所以在這部分我們也知道明年度開始就會進行優化兒童醫療照護計畫的第二期那在這部分期待能夠確保提供所有的兒童必須的醫療都能夠得到好的協助\n\n01:22.808 --> 01:40.928\n本席上次也有請教過部長有關於這個在優化兒童照護醫療過程當中兒童醫療輔導師他在臺灣是一個已經在執行中可是還沒有辦法能夠得到很多的重視因為我們知道\n\n01:41.829 --> 01:42.350\n議員提供的內容\n\n02:07.293 --> 02:14.600\n就能夠讓他們的整個照顧過程可以更完整那這部分不知道部長目前的狀況如何\n\n02:15.792 --> 02:39.569\n兒童醫療輔導師這樣子一個概念我想是來自美國加拿大那邊我們國內也有一些人去那邊受到訓練回來也在做這個工作但是如果要他變成一個專業的職類就變成在國內必須要教考、訓用都有所以這個離兒童醫療輔導師的這一個部分的話離這個還很遠\n\n02:44.292 --> 03:01.191\n但是我們是可以用一個計畫型的事辦計畫型的也許來可以試試看那也就是說這些人要受到一定的訓練但是他可能要有一些專業的背景那這樣子會比較容易來做處理\n\n03:02.052 --> 03:17.118\n是,好,所以我們很期待如果能夠有一個示範計畫或者是一個專案型的計畫的話希望能夠把這樣的需求也能夠納入到兒童醫療照護的一部分謝謝部長\n\n03:19.199 --> 03:45.971\n有關於兒癌其實去年2022年一共有436位的兒癌被診斷等於每一天至少會有一位兒癌被確診其中有146位是屬於血癌另外將近300位是屬於固態癌症固態癌症包括血癌的病人其實對化療對放射治療效果都非常好\n\n03:46.511 --> 04:02.559\n目前5年的存活率以上意思就是說如果我們好好把這一群兒癌的病人照顧好他的存活率是非常高的當然我們很希望經過治療以後他比較長期的副作用可以減少\n\n04:03.639 --> 04:26.946\n很多兒癌尤其是腦神經部分的腫瘤對於放射治療敏感度很高可是我們也很擔心現在一般的放射治療其實它對正常組織的傷害相對是比較高那透過先進的醫學包括直指治療是一個可以提供減低副作用相關的這個比較適當的一個治療選項\n\n04:29.006 --> 04:48.365\n這一部分不知道部裡面有沒有針對於如何能夠有機會納入一個健保給付的狀況因為去年的資料司書長是說還沒有收到相關的申請那不知道目前的狀況如何在目前應該有這一個\n\n04:51.988 --> 04:58.051\n新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告\n\n05:19.801 --> 05:20.322\n委員會主席\n\n05:38.444 --> 05:41.926\n二、邀請衛生福利部部長、教育部次長就«出養童遭虐致死事件檢討會議要求新北市政府及兒童福利聯盟所提供之檢討報告》\n\n05:55.935 --> 06:16.985\n再過來就是要跟你確認一下剛剛菌輝委員也有提到的這個癌症新藥基金的部分我們知道其實如果希望能夠儘速的去使用到這個新藥的基金很快去銜接國人在這部分的醫療需要\n\n06:18.246 --> 06:27.463\n大家都因應期盼所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題那部長這邊還有沒有補充?\n\n06:31.148 --> 06:59.174\n有關於這個部分的話當初是有兩個意見一個就是說去修癌症防治法成立一個特別的基金那這個部分的話會有一些比較麻煩的問題也就是說未來這個假設說叫做基金這個基金的話可能不是只有癌症可能罕病的話也必須會是進來那這樣子又要修一個罕病的那個防治條例\n\n07:00.274 --> 07:29.566\n所以這樣子第一個在法規上面的話那會變成讓這個新要的範圍受到限縮這是第一個第二個依現在的財政紀律法如果政府要去設這個基金的話那就必須要有什麼財源等等這些的規劃都可以所以主計總署對這個是持比較保留的態度所以我們現在的做法就是先把這個機制因為是需要公務基金\n\n07:30.086 --> 07:55.082\n公務基金就先依註到健保的裡面來健保基金裡面來但是因為他是特別要做指定的用途的所以我們就要去修這個前面健康保險的這個基金收支管理局應用辦法讓這個這些公務預算的補貼進來的這一些基金可以做指定用途的使用\n\n07:56.002 --> 08:24.675\n阿不會說一定通通都到這一個變成說是那個總額裡面的一部分或是說變成是至少讓社會或者是醫界不要疑慮說進入到健保總額造成一些不當的影響好謝謝那再過來就是我們也知道還有\n\n08:25.835 --> 08:53.421\n他如果是女性癌友的話他對於生育的這個權益的保障我們也希望能夠適度的提高尤其是在少子化的這個過程當中所以不知道部裡面有沒有開始在研議有關動卵補助如果是40歲以前的女性因為癌症診療關係造成了這種需要的話那這方面希望能夠有更積極的作為來協助\n\n08:55.670 --> 09:17.432\n目前全世界我們是對所謂的社會性凍卵這個是沒有也就是說你為了自己的需要然後去做凍卵那準備說以後再來取出來用這個是沒有說有任何的政府補助但是對醫療性的也就是說剛剛像委員提到的你這個因為癌症你可能要接受化療接受放射療法\n\n09:18.012 --> 09:44.288\n那可能會影響到你的生子的組織所以這一類的動亂先取出來動亂以免說以後沒有機會這個是有那我們現在是往這方面去做研議那因為全民健保法裡面是規定是人工生子的話是不給付所以我們必須要用公務預算那這部分的話我已經在請國民健康署在做這一方面的研議\n\n09:44.946 --> 09:58.113\n好希望讓我們的婦女們尤其是有因為癌症診療處理當中造成的影響也能夠讓她更願意把這個生育的部分納為她的重要考量那最後還是有關於\n\n10:00.454 --> 10:21.621\n這個癌症的早期發現是真的是能夠能夠幫助整個癌友得到最好治癒率的機會所以我們很期待很期待在做篩檢的部分能夠針對於條件做適度的放寬那因為時間的關係我們希望把這些資訊也提供給部裡做參考\n\n","segments":[{"start":10.156,"end":12.203,"text":"謝謝主席麻煩薛部長請薛部長"},{"start":21.853,"end":42.17,"text":"今天就兩個部分來跟部長討論一下第一部分就是如何落實兒童的友善醫療第二部分就是針對於癌症還是一個重大議題如何能夠強化我們的癌症篩檢來提升整個癌症的存活率"},{"start":43.451,"end":64.665,"text":"有關於兒童友善醫療的部分應該是多面向的因為我們台灣真的少子化那也期待每一個孩子都是保我們應該在健康的時候給他很完整的照護當他有疾病的時候如何能夠讓他接受整體的醫療而且能夠讓他順利的康復"},{"start":65.737,"end":81.587,"text":"所以在這部分我們也知道明年度開始就會進行優化兒童醫療照護計畫的第二期那在這部分期待能夠確保提供所有的兒童必須的醫療都能夠得到好的協助"},{"start":82.808,"end":100.928,"text":"本席上次也有請教過部長有關於這個在優化兒童照護醫療過程當中兒童醫療輔導師他在臺灣是一個已經在執行中可是還沒有辦法能夠得到很多的重視因為我們知道"},{"start":101.829,"end":102.35,"text":"議員提供的內容"},{"start":127.293,"end":134.6,"text":"就能夠讓他們的整個照顧過程可以更完整那這部分不知道部長目前的狀況如何"},{"start":135.792,"end":159.569,"text":"兒童醫療輔導師這樣子一個概念我想是來自美國加拿大那邊我們國內也有一些人去那邊受到訓練回來也在做這個工作但是如果要他變成一個專業的職類就變成在國內必須要教考、訓用都有所以這個離兒童醫療輔導師的這一個部分的話離這個還很遠"},{"start":164.292,"end":181.191,"text":"但是我們是可以用一個計畫型的事辦計畫型的也許來可以試試看那也就是說這些人要受到一定的訓練但是他可能要有一些專業的背景那這樣子會比較容易來做處理"},{"start":182.052,"end":197.118,"text":"是,好,所以我們很期待如果能夠有一個示範計畫或者是一個專案型的計畫的話希望能夠把這樣的需求也能夠納入到兒童醫療照護的一部分謝謝部長"},{"start":199.199,"end":225.971,"text":"有關於兒癌其實去年2022年一共有436位的兒癌被診斷等於每一天至少會有一位兒癌被確診其中有146位是屬於血癌另外將近300位是屬於固態癌症固態癌症包括血癌的病人其實對化療對放射治療效果都非常好"},{"start":226.511,"end":242.559,"text":"目前5年的存活率以上意思就是說如果我們好好把這一群兒癌的病人照顧好他的存活率是非常高的當然我們很希望經過治療以後他比較長期的副作用可以減少"},{"start":243.639,"end":266.946,"text":"很多兒癌尤其是腦神經部分的腫瘤對於放射治療敏感度很高可是我們也很擔心現在一般的放射治療其實它對正常組織的傷害相對是比較高那透過先進的醫學包括直指治療是一個可以提供減低副作用相關的這個比較適當的一個治療選項"},{"start":269.006,"end":288.365,"text":"這一部分不知道部裡面有沒有針對於如何能夠有機會納入一個健保給付的狀況因為去年的資料司書長是說還沒有收到相關的申請那不知道目前的狀況如何在目前應該有這一個"},{"start":291.988,"end":298.051,"text":"新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告新北市政府、臺北市政府及兒童福利聯盟所提供之檢討報告"},{"start":319.801,"end":320.322,"text":"委員會主席"},{"start":338.444,"end":341.926,"text":"二、邀請衛生福利部部長、教育部次長就 «出養童遭虐致死事件檢討會議要求新北市政府及兒童福利聯盟所提供之檢討報告》"},{"start":355.935,"end":376.985,"text":"再過來就是要跟你確認一下剛剛菌輝委員也有提到的這個癌症新藥基金的部分我們知道其實如果希望能夠儘速的去使用到這個新藥的基金很快去銜接國人在這部分的醫療需要"},{"start":378.246,"end":387.463,"text":"大家都因應期盼所以我們很希望能夠透過一個順利的而且是穩定的方式來解決這個問題那部長這邊還有沒有補充?"},{"start":391.148,"end":419.174,"text":"有關於這個部分的話當初是有兩個意見一個就是說去修癌症防治法成立一個特別的基金那這個部分的話會有一些比較麻煩的問題也就是說未來這個假設說叫做基金這個基金的話可能不是只有癌症可能罕病的話也必須會是進來那這樣子又要修一個罕病的那個防治條例"},{"start":420.274,"end":449.566,"text":"所以這樣子第一個在法規上面的話那會變成讓這個新要的範圍受到限縮這是第一個第二個依現在的財政紀律法如果政府要去設這個基金的話那就必須要有什麼財源等等這些的規劃都可以所以主計總署對這個是持比較保留的態度所以我們現在的做法就是先把這個機制因為是需要公務基金"},{"start":450.086,"end":475.082,"text":"公務基金就先依註到健保的裡面來健保基金裡面來但是因為他是特別要做指定的用途的所以我們就要去修這個前面健康保險的這個基金收支管理局應用辦法讓這個這些公務預算的補貼進來的這一些基金可以做指定用途的使用"},{"start":476.002,"end":504.675,"text":"阿不會說一定通通都到這一個變成說是那個總額裡面的一部分或是說變成是至少讓社會或者是醫界不要疑慮說進入到健保總額造成一些不當的影響好謝謝那再過來就是我們也知道還有"},{"start":505.835,"end":533.421,"text":"他如果是女性癌友的話他對於生育的這個權益的保障我們也希望能夠適度的提高尤其是在少子化的這個過程當中所以不知道部裡面有沒有開始在研議有關動卵補助如果是40歲以前的女性因為癌症診療關係造成了這種需要的話那這方面希望能夠有更積極的作為來協助"},{"start":535.67,"end":557.432,"text":"目前全世界我們是對所謂的社會性凍卵這個是沒有也就是說你為了自己的需要然後去做凍卵那準備說以後再來取出來用這個是沒有說有任何的政府補助但是對醫療性的也就是說剛剛像委員提到的你這個因為癌症你可能要接受化療接受放射療法"},{"start":558.012,"end":584.288,"text":"那可能會影響到你的生子的組織所以這一類的動亂先取出來動亂以免說以後沒有機會這個是有那我們現在是往這方面去做研議那因為全民健保法裡面是規定是人工生子的話是不給付所以我們必須要用公務預算那這部分的話我已經在請國民健康署在做這一方面的研議"},{"start":584.946,"end":598.113,"text":"好希望讓我們的婦女們尤其是有因為癌症診療處理當中造成的影響也能夠讓她更願意把這個生育的部分納為她的重要考量那最後還是有關於"},{"start":600.454,"end":621.621,"text":"這個癌症的早期發現是真的是能夠能夠幫助整個癌友得到最好治癒率的機會所以我們很期待很期待在做篩檢的部分能夠針對於條件做適度的放寬那因為時間的關係我們希望把這些資訊也提供給部裡做參考"}]}}}}